Twin Anemia Polycythemia Sequence (TAPS) affects families across the world every day of the year. By forming a strong collaboration between patient organizations and researchers, our aim is to raise awareness worldwide, through sharing stories from our communities, and highlighting the research that has made an impact and changed the lives of those affected by TAPS.
The committee is made up by representatives from all walks of life, and from the patient, public and professional communities.
Committee Members
Stephanie Ernst, Stichting TAPS Support, The Netherlands
Emilie Martinez, The Kaiden Paul Foundation, USA