Twin Anemia Polycythemia Sequence (TAPS) has only been recognized for about twenty years. In that time, many parents and clinicians have had to search hard for clear information. This year, starting with International TAPS Day on March 3, we are using that twenty year mark to focus on TAPS across a whole year, not just for one date on the calendar.
Through our newsletter, we will share straightforward explanations of TAPS, updates on new research, and details of projects and events from the worldwide TAPS awareness community. We will also highlight how different families, advocates, and clinicians are working in their own countries to improve understanding and care, so you can see what is happening beyond your own clinic or social media feed.
If you want to keep track of this full year of work, join our mailing list. You will be the first to know about plans for March 3, long term campaigns, and practical resources for families, adults who had TAPS as babies, and professionals who support them. Add your email below to stay connected with useful, no-nonsense information about Twin Anemia Polycythemia Sequence, all year round.