20 Years of TAPS

Days left until International TAPS Day – March 3 2026

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What is TAPS?

Twin Anemia Polycythemia Sequence is a rare disease affecting twins who share a placenta.

Why March 3?

March 3rd marks the day our rare disease got it’s name, and recognizes the pioneers of research into TAPS.

Who are we?

We are collaboration between patient organizations and professionals, dedicated to raising awareness together.

Events

What’s coming up in 2026?
See all the events for the 20th year of TAPS research in our handy calendar.

Participating Organisations

To add your logo, please contact hello@tapssupport.com.

Sponsors

To discuss sponsorship of events, please email hello@tapssupport.com

Help raise TAPS awareness

March 3 is International TAPS Day, dedicated to raising awareness of Twin Anemia Polycythemia Sequence (TAPS). Often mistakenly called a form of Twin-Twin Transfusion Syndrome (TTTS), TAPS is a separate condition with distinct diagnostic criteria, progression, and outcomes. Recognizing these differences is critical to improving detection, treatment, and long-term care.

This year marks 20 years since the publication of the first papers on TAPS, and during 2026, we will be spreading awareness across the whole year.

Watch our website to learn more.

TAPS research has evolved so much. We now know how and when to screen with MCA dopplers. We also know more about the other signs and that it is vital to look for those.  It’s also essential that we recognize the short and long-term effects of post-laser TAPS and spontaneous TAPS. Research is evolving continuously, and we need to raise the awareness of staying up to date with the latest findings. Twin Anemia Polycythemia Sequence Day is about recognizing the evolution of TAPS research and raising awareness.  ” .”

Prof. Enrico Lopriore

Lived experience and research together with:

The TAPS Support Foundation

The Kaiden Paul Foundation

Fetal Therapy LUMC Leiden

Want to learn more?

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