20 Years of TAPS
Twenty years of TAPS research as told by clinicians, researchers and families in their own words.
International TAPS Day – March 3 2027
Days left until the end of #20Years of TAPS.
What is TAPS?
Twin Anemia Polycythemia Sequence is a rare disease affecting twins who share a placenta.
Why March 3?
March 3rd marks the day our rare disease got it’s name, and recognizes the pioneers of research into TAPS.
Who are we?
We are collaboration between patient organizations and professionals, dedicated to raising awareness together.
Events
What’s coming up in 2026?
See all the events for the 20th year of TAPS research in our handy calendar.
Links
Participating Organisations
TAPS awareness does not belong to one hospital, one foundation, or one family. “20 Years of TAPS” brings together families, clinicians, researchers, and support organizations who want to recognize this research and the impact it has had.
Adding a logo to the International TAPS Day website is simple. It shows support for TAPS research and care, and puts your name with others who work with, study, or have experienced TAPS.
To add your logo, please contact hello@tapssupport.com.
Sponsors
To discuss sponsorship of events, please email hello@tapssupport.com
Help raise TAPS awareness
March 3 is International TAPS Day, dedicated to raising awareness of Twin Anemia Polycythemia Sequence (TAPS). Often mistakenly called a form of Twin-Twin Transfusion Syndrome (TTTS), TAPS is a separate condition with distinct diagnostic criteria, progression, and outcomes. Recognizing these differences is critical to improving detection, treatment, and long-term care.
This year marks 20 years since the publication of the first papers on TAPS, and during 2026, we will be spreading awareness across the whole year.
Watch our website to learn more.
“TAPS research has evolved so much. We now know how and when to screen with MCA dopplers. We also know more about the other signs and that it is vital to look for those. It’s also essential that we recognize the short and long-term effects of post-laser TAPS and spontaneous TAPS. Research is evolving continuously, and we need to raise the awareness of staying up to date with the latest findings. Twin Anemia Polycythemia Sequence Day is about recognizing the evolution of TAPS research and raising awareness. ” .”
Prof. Enrico Lopriore
Lived experience and research together with:
The TAPS Support Foundation
The Kaiden Paul Foundation